AFTERSHOCKS – A Mother’s Perspective

About a week later we finally were allowed to come home. An entire month later Brandhi had finished all of her medications and was to start physical therapy.  Her strength was coming back she was walking again and we were starting to see a light at the end of the tunnel.  Relapsing Remitting is what Brandhi’s form of MS is called.  So, big sigh, we are going into remission or so we thought. 

            Brandhi was sent home on a month long taper of oral steroids.  I was eager to get home on the computer and start reading about this incurable disease my daughter was diagnosed with.  The more I read, the more terrified I became.  I learned about the different forms or stages of this disease and automatically my mind went to worst case scenario.  

            Brandhi’s diagnosis of Relapsing Remitting Multiple Sclerosis is the form that most people have.  This form has clear relapses or attacks that last anywhere from a few days, weeks or maybe longer; however, with most of these attacks a person will have a full recovery or have some symptoms slightly remain.

            Secondary Progressive Multiple Sclerosis usually starts out as Relapsing Remitting Multiple Sclerosis; however, this form consistently becomes progressive and has more frequent relapses or attacks with only minor remission. 

            Primary Progressive Multiple Sclerosis has a definite progression from the beginning without any noticeable remission or only occasional remission. 

            One of the hardest things about Multiple Sclerosis is the unpredictability of the disease.  You never know what course this disease is going to take.  At any given time it can progress.  I was faced with the uncertainty of Brandhi’s future.  As a parent we have such big hopes and dreams for our children and a debilitating, incurable disease was not in my plans for her.

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